geographile<p>A lot of the <a href="https://sfba.social/tags/creakyChats" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>creakyChats</span></a> community on Twitter seems to have dissipated since Twitter went kaplooey, but the <a href="https://sfba.social/tags/Discord" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Discord</span></a> channel is still there. It doesn't seem very active these days, but it's there, and we would love to see you if you have <a href="https://sfba.social/tags/arthritis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>arthritis</span></a> or a <a href="https://sfba.social/tags/chronic" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>chronic</span></a> illness. Come join us, we're nice people.</p><p><a href="https://discord.com/invite/nuh9TTsj" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://</span><span class="">discord.com/invite/nuh9TTsj</span><span class="invisible"></span></a></p><p><a href="https://sfba.social/tags/ChronicPain" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ChronicPain</span></a> <a href="https://sfba.social/tags/chronicIllness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>chronicIllness</span></a> <a href="https://sfba.social/tags/CrohnsDisease" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>CrohnsDisease</span></a> <a href="https://sfba.social/tags/psoriaticArthritis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>psoriaticArthritis</span></a> <a href="https://sfba.social/tags/IBS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>IBS</span></a> <a href="https://sfba.social/tags/rheumatoidDisease" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>rheumatoidDisease</span></a> <a href="https://sfba.social/tags/rheumatoidArthritis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>rheumatoidArthritis</span></a> <a href="https://sfba.social/tags/rheumatoid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>rheumatoid</span></a> <a href="https://sfba.social/tags/alopecia" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>alopecia</span></a> <a href="https://sfba.social/tags/spondylitis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>spondylitis</span></a> <a href="https://sfba.social/tags/autoimmune" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>autoimmune</span></a> <a href="https://sfba.social/tags/asthma" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>asthma</span></a> <a href="https://sfba.social/tags/epilepsy" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>epilepsy</span></a> <a href="https://sfba.social/tags/eczema" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>eczema</span></a> <a href="https://sfba.social/tags/fibro" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>fibro</span></a> <a href="https://sfba.social/tags/FMS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>FMS</span></a> <a href="https://sfba.social/tags/chronicFatigue" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>chronicFatigue</span></a> <a href="https://sfba.social/tags/AddisonDisease" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>AddisonDisease</span></a><br><a href="https://sfba.social/tags/Celiac" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Celiac</span></a> <a href="https://sfba.social/tags/Dermatomyositis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Dermatomyositis</span></a><br><a href="https://sfba.social/tags/thyroidDisease" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>thyroidDisease</span></a> <a href="https://sfba.social/tags/ibd" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ibd</span></a> <a href="https://sfba.social/tags/ms" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ms</span></a> <a href="https://sfba.social/tags/myastheniaGravis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>myastheniaGravis</span></a> <a href="https://sfba.social/tags/Sj%C3%B6grenSyndrome" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>SjögrenSyndrome</span></a><br> <a href="https://sfba.social/tags/lupus" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>lupus</span></a> <a href="https://sfba.social/tags/diabetes" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>diabetes</span></a></p>
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#MyastheniaGravis
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CDCastillo<p>Nueva alternativa ahorradora de esteroides en pacientes con <a href="https://mastodon.cloud/tags/MiasteniaGravis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MiasteniaGravis</span></a> y anticuerpos anti receptor de acetilcolina positivos. <a href="https://mastodon.cloud/tags/Zilucoplan" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Zilucoplan</span></a> , un inhibidor de complemento</p><p><a href="https://mastodon.cloud/tags/MG" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MG</span></a> <a href="https://mastodon.cloud/tags/MyastheniaGravis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MyastheniaGravis</span></a> <a href="https://mastodon.cloud/tags/Myasthenia" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Myasthenia</span></a> <a href="https://mastodon.cloud/tags/C5" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>C5</span></a> <a href="https://mastodon.cloud/tags/ComplementInhibitor" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ComplementInhibitor</span></a> </p><p><a href="https://www.thelancet.com/journals/laneur/article/PIIS1474-4422(23)00080-7/fulltext" rel="nofollow noopener noreferrer" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">thelancet.com/journals/laneur/</span><span class="invisible">article/PIIS1474-4422(23)00080-7/fulltext</span></a></p>
Susan87505<p><a href="https://mindly.social/tags/Save" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Save</span></a> 40% on all paintings with Code: SAVE40<br><a href="https://mindly.social/tags/ColorBySusan" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ColorBySusan</span></a>'s shop on Etsy <a href="https://www.etsy.com/shop/ColorBySusan" rel="nofollow noopener noreferrer" target="_blank"><span class="invisible">https://www.</span><span class="">etsy.com/shop/ColorBySusan</span><span class="invisible"></span></a> <a href="https://www.etsy.com/shop/ColorBySusan" rel="nofollow noopener noreferrer" target="_blank"><span class="invisible">https://www.</span><span class="">etsy.com/shop/ColorBySusan</span><span class="invisible"></span></a> <a href="https://mindly.social/tags/disabled" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>disabled</span></a> <a href="https://mindly.social/tags/artist" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>artist</span></a> <a href="https://mindly.social/tags/myastheniagravis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>myastheniagravis</span></a> <a href="https://mindly.social/tags/rheumatoidarthritis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>rheumatoidarthritis</span></a> <a href="https://mindly.social/tags/fibromyalgia" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>fibromyalgia</span></a> <a href="https://mindly.social/tags/giftideas" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>giftideas</span></a> <a href="https://mindly.social/tags/buyintoart" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>buyintoart</span></a></p>
The Chronic Sloth<p>Free <a href="https://mastodon.social/tags/myasthenia" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>myasthenia</span></a> art to download and use as <a href="https://mastodon.social/tags/stickers" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>stickers</span></a> or <a href="https://mastodon.social/tags/pins" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>pins</span></a>!<br>Want more? Check them out: <a href="https://ko-fi.com/i/IC0C6PHG8C" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://</span><span class="">ko-fi.com/i/IC0C6PHG8C</span><span class="invisible"></span></a> </p><p><a href="https://mastodon.social/tags/myastheniagravis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>myastheniagravis</span></a> <a href="https://mastodon.social/tags/funny" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>funny</span></a> <a href="https://mastodon.social/tags/chronicillness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>chronicillness</span></a> <a href="https://mastodon.social/tags/disabled" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>disabled</span></a> <a href="https://mastodon.social/tags/disability" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>disability</span></a> <a href="https://mastodon.social/tags/mestinon" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>mestinon</span></a> <a href="https://mastodon.social/tags/coffee" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>coffee</span></a> <a href="https://mastodon.social/tags/memes" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>memes</span></a> <a href="https://mastodon.social/tags/autoimmune" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>autoimmune</span></a> <a href="https://mastodon.social/tags/medication" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>medication</span></a> <a href="https://mastodon.social/tags/mg" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>mg</span></a> <a href="https://mastodon.social/tags/myastheniawarrior" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>myastheniawarrior</span></a> <a href="https://mastodon.social/tags/myasthenia_gravis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>myasthenia_gravis</span></a> <a href="https://mastodon.social/tags/Myasthenia" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Myasthenia</span></a> <a href="https://mastodon.social/tags/art" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>art</span></a> <a href="https://mastodon.social/tags/stickerart" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>stickerart</span></a> <a href="https://mastodon.social/tags/pinart" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>pinart</span></a></p>
Susan87505<p>Smiling Sloth; Acrylic Portrait of Furry Animal, Gift of Love & Friendship, Artwork, Myasthenia Gravis Mascot, Printable Download File by ColorBySusan on Etsy <a href="https://www.etsy.com/listing/1484385426/smiling-sloth-acrylic-portrait-of-furry" rel="nofollow noopener noreferrer" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">etsy.com/listing/1484385426/sm</span><span class="invisible">iling-sloth-acrylic-portrait-of-furry</span></a> <a href="https://mindly.social/tags/giftideas" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>giftideas</span></a> <a href="https://mindly.social/tags/myastheniagravis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>myastheniagravis</span></a> <a href="https://mindly.social/tags/mg" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>mg</span></a> <a href="https://mindly.social/tags/sloths" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>sloths</span></a> <a href="https://mindly.social/tags/animals" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>animals</span></a> <a href="https://mindly.social/tags/slow" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>slow</span></a></p>
Alan Kotok<p>Engineered T-Cells Shown Safe, Reduce Myasthenia Gravis</p><p>Results of a small clinical trial show genetically altered T-cells from patients with myasthenia gravis are well tolerated and reduce symptoms of the disease. </p><p><a href="https://sciencebusiness.technewslit.com/?p=44933" rel="nofollow noopener noreferrer" target="_blank"><span class="invisible">https://</span><span class="ellipsis">sciencebusiness.technewslit.co</span><span class="invisible">m/?p=44933</span></a> </p><p><a href="https://journa.host/tags/News" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>News</span></a> <a href="https://journa.host/tags/Science" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Science</span></a> <a href="https://journa.host/tags/Business" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Business</span></a> <a href="https://journa.host/tags/MyastheniaGravis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MyastheniaGravis</span></a> <a href="https://journa.host/tags/Autoimmune" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Autoimmune</span></a> <a href="https://journa.host/tags/ClinicalTrial" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ClinicalTrial</span></a> <a href="https://journa.host/tags/Biotechnology" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Biotechnology</span></a> <a href="https://journa.host/tags/Tcells" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Tcells</span></a> <a href="https://journa.host/tags/Autologous" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Autologous</span></a></p>
Susan87505<p>Smiling <a href="https://mindly.social/tags/sloth" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>sloth</span></a> Acrylic <a href="https://mindly.social/tags/portrait" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>portrait</span></a> of <a href="https://mindly.social/tags/furry" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>furry</span></a> Animal Artwork, LGBTQ Pride Month, Printable Digital Download File by ColorBySusan on Etsy <a href="https://www.etsy.com/listing/1484385426/smiling-sloth-acrylic-portrait-of-furry" rel="nofollow noopener noreferrer" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">etsy.com/listing/1484385426/sm</span><span class="invisible">iling-sloth-acrylic-portrait-of-furry</span></a> <a href="https://mindly.social/tags/myastheniagravis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>myastheniagravis</span></a> <a href="https://mindly.social/tags/myasthenia_gravis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>myasthenia_gravis</span></a> <a href="https://mindly.social/tags/mascot" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>mascot</span></a> <a href="https://mindly.social/tags/myastheniagravisawarenessmonth" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>myastheniagravisawarenessmonth</span></a> <a href="https://mindly.social/tags/MGAwarenessDay" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MGAwarenessDay</span></a> <a href="https://mindly.social/tags/MGawarenessmonth" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MGawarenessmonth</span></a></p>
Susan87505<p>Smiling <a href="https://mindly.social/tags/sloth" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>sloth</span></a> Acrylic <a href="https://mindly.social/tags/portrait" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>portrait</span></a> of <a href="https://mindly.social/tags/furry" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>furry</span></a> Animal Artwork, LGBTQ Pride Month, Printable Digital Download File by ColorBySusan on Etsy <a href="https://www.etsy.com/listing/1484385426/smiling-sloth-acrylic-portrait-of-furry" rel="nofollow noopener noreferrer" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">etsy.com/listing/1484385426/sm</span><span class="invisible">iling-sloth-acrylic-portrait-of-furry</span></a> <a href="https://mindly.social/tags/myastheniagravis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>myastheniagravis</span></a> <a href="https://mindly.social/tags/myasthenia_gravis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>myasthenia_gravis</span></a> <a href="https://mindly.social/tags/mascot" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>mascot</span></a> <a href="https://mindly.social/tags/myastheniagravisawarenessmonth" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>myastheniagravisawarenessmonth</span></a> <a href="https://mindly.social/tags/MGAwarenessDay" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MGAwarenessDay</span></a> <a href="https://mindly.social/tags/MGawarenessmonth" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MGawarenessmonth</span></a></p>
Susan87505<p>Smiling Sloth; Acrylic Portrait of Furry Animal, Father's Day Gift of Love, Artwork, LGBTQ Pride Month, Printable Digital Download File by ColorBySusan on Etsy <a href="https://www.etsy.com/listing/1484385426/smiling-sloth-acrylic-portrait-of-furry" rel="nofollow noopener noreferrer" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">etsy.com/listing/1484385426/sm</span><span class="invisible">iling-sloth-acrylic-portrait-of-furry</span></a> The sloth is the mascot of Myasthenia Gravis because they represent the slowness of our movements. ❤️ <a href="https://mindly.social/tags/MyastheniaGravis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MyastheniaGravis</span></a> Awareness Month <a href="https://mindly.social/tags/autoimmunedisease" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>autoimmunedisease</span></a></p>
Susan87505<p>Good morning friends. I'm in the hospital with a major <a href="https://mindly.social/tags/myastheniagravis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>myastheniagravis</span></a> flare. <a href="https://mindly.social/tags/autoimmune" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>autoimmune</span></a> stuff sucks. I always have a bit of shortness of breath but the last 3-4 days, it's been much worse every time I move a muscle. So.... I'm bored & can't sleep. Would appreciate almost any distraction</p>
István Ujhelyi<p>Yesterday I had the chance to meet the <a href="https://respublicae.eu/tags/MyastheniaGravis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MyastheniaGravis</span></a> patient organisation representatives from all over <a href="https://respublicae.eu/tags/Europe" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Europe</span></a>. During the meeting, we have discussed the next steps of the creation of a dedicated European MG Awareness Day on 2 June. </p><p> 🐦🔗: <a href="https://n.respublicae.eu/istvan_ujhelyi/status/1621417257241911297" rel="nofollow noopener noreferrer" target="_blank"><span class="invisible">https://</span><span class="ellipsis">n.respublicae.eu/istvan_ujhely</span><span class="invisible">i/status/1621417257241911297</span></a></p>
Susan87505<p><a href="https://mindly.social/tags/myastheniagravis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>myastheniagravis</span></a> <a href="https://mindly.social/tags/mg" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>mg</span></a> is trying to get my attention lately. My balance is pretty sketchy, my vision blurry & hard to keep eyes open. All my muscles tire so quickly...feels like I did an hour of Zumba instead of pull my pants up. Oh, and the lovely shortness of breath <a href="https://mindly.social/tags/chronicillness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>chronicillness</span></a></p>
Kathleen Burnard :BP_cuff:<p>3/6 What I do know, is that this is unbelievably irresponsible and unsafe on multiple levels. My father and I are both <a href="https://med-mastodon.com/tags/immunocompromised" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>immunocompromised</span></a> and <a href="https://med-mastodon.com/tags/HighRisk" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>HighRisk</span></a>. This time last year he was in and out of the hospital for infections following a month long ICU stay for an aortic dissection. He has <a href="https://med-mastodon.com/tags/MyastheniaGravis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MyastheniaGravis</span></a>. His chances with <a href="https://med-mastodon.com/tags/Covid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Covid</span></a> are not good. Mine are a little bit better. He will definitely die. I will only probably die. But for some reason I am the only one with concerns.<br><a href="https://med-mastodon.com/tags/CovidIsNotOver" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>CovidIsNotOver</span></a> <a href="https://med-mastodon.com/tags/MaskUp" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MaskUp</span></a></p>
Kevin Pho, MD<p>My journey with myasthenia gravis: a chronic autoimmune disease</p><p>Myasthenia gravis is a chronic autoimmune neuromuscular disease that causes weakness in the skeletal muscles, which are responsible for breathing and moving parts of the body, including the arms and legs. </p><p>Heather Finlay-Morreale is a pediatrician.</p><p><a href="https://youtube.com/shorts/lXaOcmzDG6Q" rel="nofollow noopener noreferrer" target="_blank"><span class="invisible">https://</span><span class="">youtube.com/shorts/lXaOcmzDG6Q</span><span class="invisible"></span></a></p><p>Listen here: <a href="https://kevinmd.com/podcast" rel="nofollow noopener noreferrer" target="_blank"><span class="invisible">https://</span><span class="">kevinmd.com/podcast</span><span class="invisible"></span></a></p><p><a href="https://med-mastodon.com/tags/myastheniagravis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>myastheniagravis</span></a> <a href="https://med-mastodon.com/tags/muscleweakness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>muscleweakness</span></a> <a href="https://med-mastodon.com/tags/autoimmune" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>autoimmune</span></a> <a href="https://med-mastodon.com/tags/neuromuscular" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>neuromuscular</span></a> <a href="https://med-mastodon.com/tags/acetylcholine" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>acetylcholine</span></a> <a href="https://med-mastodon.com/tags/myastheniccrisis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>myastheniccrisis</span></a> <a href="https://med-mastodon.com/tags/breathing" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>breathing</span></a></p>
Susan87505<p><a href="https://mindly.social/tags/disability" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>disability</span></a> <a href="https://mindly.social/tags/chronicillness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>chronicillness</span></a> <a href="https://mindly.social/tags/myastheniagravis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>myastheniagravis</span></a> I had a pretty awful experience tonight. I'm wondering if any of you may have had a similar thing happen. I was sitting on a bar-height chair when my sweet stepdaughter swung her legs around & knocked into my knee at the perfect spot to activate a humongous reflex & autonomic response. I felt like I was going to faint as the jolt of electricity ran from my knee into my brain. I became quite nauseous. Took 20 min or so to recover.</p>
Susan87505<p>Ugh. <a href="https://mindly.social/tags/myastheniagravis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>myastheniagravis</span></a> is kicking my behind today. And nothing tastes good. Guacamole...nope. Salsa...nope. Last hope: ice cream!</p>
Susan87505<p><span class="h-card"><a href="https://mindly.social/@willowschwartzwald" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>willowschwartzwald</span></a></span> I have <a href="https://mindly.social/tags/myastheniagravis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>myastheniagravis</span></a> and <a href="https://mindly.social/tags/rheumatoidarthritis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>rheumatoidarthritis</span></a></p>
DocCheck<p>Bei Patienten mit chronischer primärer Immun-<a href="https://nrw.social/tags/Thrombozytopenie" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Thrombozytopenie</span></a> werden häufig Glukokortikoide als Erstlinientherapie eingesetzt. Ein Wirkstoff, der bisher zur Behandlung einer <a href="https://nrw.social/tags/MyastheniaGravis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MyastheniaGravis</span></a> eingesetzt wird, könnte bald auch ihnen helfen. <br><a href="http://docc.hk/4uez9p" rel="nofollow noopener noreferrer" target="_blank"><span class="invisible">http://</span><span class="">docc.hk/4uez9p</span><span class="invisible"></span></a></p>
Susan87505<p>I live in northwestern <a href="https://mindly.social/tags/Wisconsin" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Wisconsin</span></a>, up by Lake Superior. But lived in southern New Mexico for 20+ years. From one extreme to another. I'm a <a href="https://mindly.social/tags/disabled" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>disabled</span></a> occupational therapist. I've been disabled for 14 years & it sux more than I thought it would but less that its potential. I love painting & gardening to distract from <a href="https://mindly.social/tags/myastheniagravis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>myastheniagravis</span></a> and <a href="https://mindly.social/tags/rheumatoidarthritis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>rheumatoidarthritis</span></a></p>
Kathleen Burnard :BP_cuff:<p>I’ve basically been living with my partner (in large part due to this stuff), but I’m worried for my father. And come early January, I’m not sure how to easily get out of a family visit, especially in a way that doesn’t cause him further harm. <br><a href="https://med-mastodon.com/tags/CovidIsNotOver" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>CovidIsNotOver</span></a> <a href="https://med-mastodon.com/tags/Immunocompromised" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Immunocompromised</span></a> <a href="https://med-mastodon.com/tags/RareDisease" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>RareDisease</span></a> <a href="https://med-mastodon.com/tags/WearAMask" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>WearAMask</span></a> <a href="https://med-mastodon.com/tags/MaskUp" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MaskUp</span></a> <a href="https://med-mastodon.com/tags/COVIDisAirborne" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>COVIDisAirborne</span></a> <a href="https://med-mastodon.com/tags/ChronicIllness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ChronicIllness</span></a> <a href="https://med-mastodon.com/tags/Thread" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Thread</span></a> <a href="https://med-mastodon.com/tags/Covid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Covid</span></a> <a href="https://med-mastodon.com/tags/MyastheniaGravis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MyastheniaGravis</span></a> <a href="https://med-mastodon.com/tags/AorticDissection" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>AorticDissection</span></a></p>
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